mollyblack (mollyblack) wrote,

Moving Forward - After Two Steps Back

I need to do a YouTube update. It's been a while, and there's so much I have accomplished, even if my autoimmune issues have been taking my bouts of adventure in a bad way. Today, for instance, I started making necessary calls in spite of my cough, cleaned all my laundry, and my dogs laundry, ALL BY MYSELF. No caregiver to carry the laundry or make my my ridiculous to make bed (it's nearly impossible - my room is more library than bedroom).

Granted there's not a chance in hell I can go out this week to dance until maybe Thursday, but the fact is, I'm slowly getting myself free, further and further, out from the umbrella of pain killers and steroids. Granted I need to up them at times (the steroids, not the pain killers) because I do have Addison's Disease and while that may go into temporary remission, it's always this bronchial infection proved all to clearly.

Getting a bronchial infection that upped my temperature to 102˚F (after Tylenol) and an elevated heart rate of over 127 that sent me to the ER in a way I've never before experienced outside of accidents - the triage straight to private ER room and double bagged liquid replenishment (one of which was ice cold, probably to help bring my body temperature down) actually freaked me out a bit. I NEVER get temperatures; the last time before this was when Shawn and I lived in Austin and I caught some 24 hour bug. I've been hospitalized many times, but never with a temperature. Sounds stupid, but it's kind of a big deal to me with all my illnesses.

I'm still very sick. I actually coughed so hard last night I threw up everything I'd managed to eat. That's a feat in itself. So for me to be doing all this tiny stuff (for other people) is a huge accomplishment for me. I still need to find a part-time caregiver, that's for certain, but I don't need nearly as much help as I did even a couple of months ago.

I'm sorry if this sounds egotistical, but I'm proud of everything I've been accomplishing. Just made an appointment for a GP who accepts my insurance. Next to deal with: new teeth! I want my dentures to have mini fangs, dammit. So do I medical tourism this situation or just finish it at UCSF? That's a big question.
Tags: illness, updates

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